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MINNETONKA, Minn. — A Minnetonka woman is helping connect the ALS community through an app. On Jan. 5, 2022, Faith's son, Scott, was diagnosed with ALS. ALS is a fatal neurological disease that affects nerve cells in the brain and spinal cord. Scott was 50 years old at the time of his diagnosis. He was a marathon runner and avid cyclist. "For parents with children with ALS, no one wants to think they're going to watch their child die before them. It's just not the way it goes, right?" Faith said. "Our children are supposed to outlive us." Scott is what doctors call a "slow progressor." So right now, he doesn't need as much help from caregivers. It was his diagnosis that inspired Faith to do more. "I'm going to spend as much time as I can working for the great ALS community and working to make their lives as good as we possibly can under the circumstances," Faith said. Faith thrust herself into research and organizations supporting the cure for ALS. She started getting involved with Everything ALS . It's a nonprofit that's committed to bringing technology innovations and data science to support efforts from care to cure for people living with the disease. Everything ALS does that through patient-driven research, and most recently — an app. The organization launched an app-based program called "Pathfinders" a few months ago. It's aimed to empower, connect and offer essential resources to the ALS community. Those impacted by the disease know it can be isolating. Through the app, the ALS community can connect with one of nine pathfinders. Faith is one of them. "When you give, you get," Faith said. "So for me, giving to other people the love and response that I get from them, knowing that I've helped them, it just warms my heart. That feeds me." Both caregivers and people living with ALS can reach out to a pathfinder about anything — from anticipatory grief to catheter recommendations to other ALS-related resources. "People can read our bios and say, 'Oh this is the mother of someone with ALS. That's who I want to talk to because my child has ALS. They will truly understand my situation.' Or, 'Oh this pathfinder is a veteran. I need to learn more about the VA benefits. I'm going to connect with this pathfinder.'" she said. Right now, Everything ALS is still working to add more pathfinders to cater to more people and ultimately connect more people. The goal is to be able to provide the person on the other side of the app chat with whatever information, resources, or listening ear they might need. If you're interested in the program, click here or reach out to Faith at faith@everythingals.org . Beret Leone is a native Minnesotan who joined the WCCO team as a reporter in September 2022 - and she's thrilled be back home in the Twin Cities! Beret grew up in Chaska and graduated from Bethel University.Albania's prime minister has announced the government intends to block access to TikTok for one year after the killing of a schoolboy last month raised fears about the influence of social media on children. Speaking on Saturday Edi Rama declared the proposed ban would start in January. TikTok said it is seeking urgent clarifications from the Albanian government about the proposed ban. The social media platform told the BBC it had found no evidence the person who allegedly stabbed the 14-year-old boy, or the victim himself, had TikTok accounts. During a meeting in Albania's capital Tirana with teachers, parents and psychologists Rama branded TikTok as "the thug of the neighbourhood". "We are going to close it for a year and we are going to start rolling out programs that will serve the education of students and help parents follow their children's journey," Rama said. The blocking of TikTok comes less than a month after the 14-year-old student was killed and another injured in a fight near a school in southern Tirana which had its roots in a confrontation on social media. The killing sparked a debate in Albania among parents, psychologists and educational institutions about the impact of social networks on young people. "In China, TikTok promotes how students can take courses, how to protect nature, how to keep traditions, but on the TikTok outside China we see only scum and mud. Why do we need this?", Rama said. TikTok is already banned in India, which was one of the app's largest markets before it was outlawed in June 2020. It is also blocked in Iran, Nepal, Afghanistan and Somalia. TikTok is also fighting against a law passed by the US Congress which would ban the app from 19 January unless it is sold by ByteDance - its Chinese parent company. T he US Supreme Court has agreed to hear last-minute legal arguments from TikTok as to why it should not be banned or sold with a hearing scheduled for 10 January - just days before the 19 January deadline imposed by Congress. The US government is taking action against the app because of what it says are its links to the Chinese state - links which TikTok and ByteDance have denied. Several European countries including France, Germany and Belgium have enforced restrictions on social media use for children. In November Australia passed the world's strictest measures by voting to ban children under the age of 16 from using social media. That particular ban will take at least a year to implement. UK Technology Secretary Peter Kyle told the BBC that a similar ban for under-16s is "on the table" but added that he wanted to see more evidence first.

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Former UTM Party Secretary General Patricia Kaliati has sparked controversy by blaming the late Saulos Chilima for her loss in the UTM party presidential elections. Kaliati, who was competing for the top spot, garnered a mere 20 votes, while her opponent, Dalitso Kabambe, secured an overwhelming 600 votes. In a voice clip circulating on social media, Kaliati is heard blaming Chilima’s spirit for her defeat. “How could Saulos allow me to lose the elections?” she lamented. Many have expressed surprise at Kaliati’s remarks, finding it unusual for the living to blame the dead. Kaliati’s comments have raised eyebrows, especially considering her previous stance as UTM Party Secretary General. In the past, she has spoken optimistically about the party’s prospects, even predicting that UTM would rake in more votes during the 2025 elections.

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